Facts

What You Need To Know About Down Syndrome

FIRST, A LITTLE BACKGROUND

  • Down syndrome was discovered by Dr. Langdon Down in 1866
  • It is a chromosomal anomaly, or mix-up, in the genetic blue-print that occurs at conception
  • Individuals with Down Syndrome have an extra #21 chromosome; The medical term is “Trisomy 21”
  • Approximately 1 in 797 live births in BC is a child with Down syndrome

WHAT DOWN SYNDROME LOOKS LIKE

  • Children with Down Syndrome have some physical, intellectual, and emotional developmental delays
  • Children with Down Syndrome may also have other medical conditions
  • Physical characteristics may include almond-shaped eyes, a single palmar crease on one, or  both hands, and small facial features
  • Down syndrome is not related to race, religion or socio-economic status

GETTING TO KNOW INDIVIDUALS WITH DOWN SYNDROME

Children with Down Syndrome actually share more similarities than differences with other children – they learn, laugh, play, and want friends.

Individuals with Down Syndrome benefit from loving parents, early medical and educational attention and positive public attitudes.

Children with Down Syndrome have a full complement of emotions and attitudes, are creative and imaginative in play and pranks, and grow up to live independent lives with varying degrees of support and accommodations needed.

On standard IQ tests, children with Down Syndrome most often score in the mild to moderate range of mental handicap. These tests do not measure many important areas of intelligence, and one will often be surprised by the memory, insight, creativity, and cleverness of the child with Down Syndrome.

Young people with Down Syndrome have dreams and the determination to reach their goals. They learn in regular classrooms in their neighbourhood schools with the children who will one day be their co-workers, neighbours, and adult friends. Young adults hold diverse and meaningful jobs, maintain their own households and make significant contributions to their communities.

Early intervention, through IDP worker and parents, benefit a child with Down Syndrome, as does speech and language therapy.

Academic intelligence is not the only measure of a person’s worth – qualities such as happiness, honesty, friendliness, determination and a free-spirited attitude to life help break through social and personal prejudices, opening doors to full membership in society.

THE NUMBERS

under 30 less than 1 in 1,000
30 1 in 900
35 1 in 400
36 1 in 300
37 1 in 230
38 1 in 180
39 1 in 135
40 1 in 105
41 1 in 60
44 1 in 35
46 1 in 20
48 1 in 16
49 1 in 12
  • 1/747 live births in 2000 in BC was a child with Down Syndrome
  • 74 children were born with Down Syndrome in BC in 2000. (Vital Statistics-Victoria)
  • 80% of children with Down Syndrome are born to mothers under the age of 35
  • Congenital heart problems may occur in many children and require prompt medical attention
  • Infants and adults are prone to hypothyroid conditions and require testing
  • 17% of individuals with Down Syndrome have an atlanto-axial gap requiring x-raying at about 3 years of age (They may require physical restrictions)

Living with Down Syndrome and Dementia: Symptoms, Challenges, and Coping Strategies

It is estimated that more than 564,000 Canadians are currently living with dementia and that over 1.1 million Canadians are directly or indirectly affected by it. Sadly, people with Down Syndrome are more likely to develop dementia, with over half likely to do so as they age.

What is dementia?
Caused by the degeneration of brain cells, ‘dementia’ refers to the decline in someone’s mental capabilities, to the extent that it significantly affects their day-to-day life. This often means that patients need full-time help with everyday activities.

There are different types of dementia – the two most common types being Alzheimer’s disease and vascular dementia. People with Down Syndrome are particularly susceptible to developing Alzheimer’s disease. The risk of Alzheimer’s disease increases with age and, due to the relatively short life expectancy of people with Down Syndrome, they are more likely to develop it at an earlier age than others.

What are the symptoms of dementia?
The symptoms of dementia vary greatly. These may include noticeable problems with memory and language, a shift in behavior, mood and/or thinking skills, and difficulty paying attention. Symptoms often progress relatively quickly from their initial stages.

What treatment is available for dementia?
There is no cure for dementia. Medications are available to ease symptoms in the short-term, but none have been recommended for people with Down Syndrome. At present, advances in treatment very much depend on research into dementia and patient involvement in clinical studies.

I’m caring for someone with dementia. How do I cope?
For loved ones in particular, looking after patients suffering from dementia can be very challenging and mentally draining. It can be daunting and upsetting to see someone close to you losing their cognitive abilities and struggling to communicate. People with dementia can be left feeling frustrated and isolated. Their behavior can also become quite erratic, and sometimes aggressive, which can be hard to deal with.

For caregivers, there are strategies that you can use to help you cope with the challenges of dementia effectively. These include speaking slowly and clearly, involving dementia patients in engaging activities, having a routine and being as positive as possible towards the patient.



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Events

NOTICE OF ANNUAL GENERAL MEETING

Dear LMDSS members and interested professionals.

This is an official announcement of the Annual General Meeting, which will be happening on June 25th, 2017 at Fleetwood Park, in Surrey, from 1:00 pm to 1:30 pm.

From April to June 23rd our office will be taking nomination requests from interested parties who would like to put their names forward for the following board of directors positions.

Vice President / Director

Once we receive your name, we will then send you a nomination package for you to complete, and return before May 24 th, 2017.

If you have any further questions, please contact Theresa at the LMDSS head office.

 

Community Support:

To attend any of the Parent Networking Groups you must register either by phone 604-591-2722, or email at info@lmdss.com.
If you require childcare you must inform us at the time of registration.

LMDSS Parent
Networking Groups:

Burnaby
Topic: Art Without Limits
Date: Thursday, May 18th, 2017
Time: 6:30 p.m.
Location:
1409 Sperling Ave, Burnaby
Cost:
 Free
R.S.V.P. by May 15th 

Langley
Topic: TBA
Date:
Time:

Location:  
Cost:

Okanagan  
Topic: Gymnastic Program
Date:
May 14th, 2017
Time: 11:00 a.m. to 12:00 noon
Location: Kelowna Gymnastix (225-1891 Springfield Road)
Cost: Contact Alicia

Surrey
Topic: TBA
Date:
Time:
Location:
Cost: 

Vancouver
Topic: TBA
Date:
Time:
Location:
Cost: LMDSS R.S.V.P. are required contact the LMDSS office.



Adults Connect (ages 19+)
Topic: Kayaking with Power To Be
Date: May 13th, 2017
Time: 10:00 a.m. to 2:00 p.m.
Location: Cates Park
(4141 Dollarton Highway, North Vancouver)
Cost: $10 per person (Bring Lunch)
Contact Mariam at Mariamrafik71@gmail.com to register by May 10th

Youth Group (10+)
Event :
Kayaking with Power To Be
Date: May 13th, 2017
Time: 10:00 a.m. to 2:00 p.m.
Location: Cates Park
(4141 Dollarton Highway, North Vancouver)

Cost: $10 per person (Bring Lunch)
Contact Mariam at Mariamrafik71@gmail.com to register by May 10th


Health & Education:

Music Therapy Classes:
Dates: Wednesday Evenings, April 5th,12th,19th,26th & May 3rd,10th,17th,24th, and 31st
Location: WC Blair, Studio #2, Boardroom – 22200 Fraser Highway, Langley, B.C.
Time: 6:30 p.m. to 7:30 p.m.
Cost: Members $40.00 – Non-Members $80.00 – Siblings $10.00
(Members and Non-Member prices include 1 parent or support person, and the special needs individual).
Erin Parr is an experienced Music Therapist focused on children with disabilities. Over 12 years of experience working with Autistic children, children with disabilities, and babies/toddlers she has applied music therapy to a wide range of situations with exciting results. Erin uses an activity-based method with a focus on and enthusiasm to facilities progress towards therapeutic goals.
Registration Deadline March 20th, 2017.

Reading & Math Program Spring Classes: (Sign Up Now)
Dates:
 April 25th to June 29th 2017– Tuesdays, Wednesdays & Thursdays
Location: #201-13281-78th Ave, Surrey
Time: 1 hour sessions available – 4-5 pm, 5-6 pm, 6-7 pm
Cost: $
20.00 per session 

Reading and Math Program Spring classes starting  April 25th, 2017 watch for registration details.

Summer classes available July & August contact the LMDSS office for details and to register.


Sexuality Classes  for 12+
Dates: Next Sessions will be announced at a later date

Time:

Location:
Cost:

Dance Fit Classes (NEW)
The Lower Mainland Down Syndrome Society will be starting up this program in the Spring. The dates are will be confirmed shortly, and will be posted.
If your child, teen, or adult is interested in making friends,having fun, and getting into shape, please email the LMDSS office to register at info@lmdss.com.

Fundraising:

T21 Awareness Walk
Date: September 9th, 2017
Time:
10:00 a.m. to 2:00 p.m.
Location:
Hawthorne Park (10513-144th Street, Surrey)
Cost:
Registration, Pledges, and Teams forms are available on the website at www.lmdss.com

Parents

Click here to order our New Parent Package!

NEW Program
LMDSS Scholarship Program [PDF]